[livingwith]

I am a 49 yr old female and was first diagnosed in my 20th week of pregnancy at the age of 30. My symptoms at the time were spilling protein in my urine and my BP was up. My daughter has PKD also and currently at the age of 18, has not experienced any problems.
I am one of five children and the only one with PKD. My parents are both deceased, my mom died at age 60 of a heart attack and my Dad at age 76 of lung cancer My Dad was checked for the disease but was negative and my Mom died before I ...Read the full article

[murtada]

Hi... my name is Murtada... I am a biologist researcher here in the Basra University... Iraq. I suffer from one year a go with PKD. My left kidney has multiple cysts and the right has simple two cysts. I have high blood pressure plus a cyst stone at my left kidney with diameter 9 mm. I have a pain on my side and back to my ribs. also I have a trouble with my heart beat. My age is 38 years old, still single because I dont like to hurt my kids with this disease. I am really excited to read your determination against this disease and you are very hard woman to treat yourself with your patience. Hope to be friend .. God protect and bless us.

Murtada

[JUSTANOTHERSOUL]

HELLO MURTADA,

I WANT TO SAY THAT I ALSO HAVE PKD AND KNOW WHAT YOU FEEL.

I WISH FOR YOUR SAFETY AND HEALTH. IF THERE WERE ANYTHING I COULD DO TO BRING PEACE I WOULD.

MAY GOD KEEP YOU.

[OBX-Jackie]

You are braver than me, PKD runs in my family, I have seen what it does, I was test growing up and I was clear of it but I know that has changed but I'm am scared to be retested now I'm older. I can feel the cyst, I have had kidney infections before but I know that this is diffrent. I don't think I can go through this...Jackie

[chicklet4321]

Hi, My name is Sherrill and I was diagnosed with PKD at 4 years old. I'm now 42 and didn't take care of myself over the years. I always felt tired all the time and I ended up getting Hepatitis when I was 10. I was extremely sick for 3 months but I still did my schoolwork. I graded with strait A's even though I thought I was dying. When I was diagnosed, the Dr. told my mom I wouldn't see 7 and I overheard the conversation. I went into a deep depression and wished I would just die and get it over with. I felt no need to think of a future when I was ill. Now at 42 years old and GOD in my life, I started nursing college in Sept. I want to help others that are going through this because I can understand how it feels. Life is what we make it. I chose to be more positive about it because I have lost numerous friends that were born "healthy". I am experiencing pain now but I still don't take any medications for it. I'm only on an extremely low dose of water pills to help with my HBP(140/90). I never had any children because I didn't want to pass this along. My dad gave it to me and he died at 46. His mother died at 56. Her mother died at 32. The list goes on in my family of deaths. I feel I will make it to 70( three score year and ten!). Science hasn't came up with a cure yet but with all the new machines and medications, we can live a lot longer with this disease. I did a lot of things I wanted to do in life. Not having children made it financially easy to travel and ride horses(even the dr. said no). live life to the fullest if you can and keep laughing!! My nick name is GIGGLES! GOD bless everybody!!!!