[januarybabe]

Hello,

I was diagnosed with cystinuria about 7 years ago and have had two years, knock on wood, free from stones. I still have prolonged pain episodes. I am currently taking Penicillamine. I have two questions. The first is does anyone else take this medication and have bad headaches? I feel like I have made a trade off, kidney stones for headaches (which is a good deal but still). The other is I am helping with an awareness campaign and looking for people who would be willing to donate a stone or two to be put on display. I know it's kind of an odd request but it's to raise funds for research. Thank you kindly.